We are a 501(c)3 non-profit organization focused on improving the quality of life for those living with adrenoleukodystrophy (ALD) and adrenomyeloneuropathy (AMN) through researchadvocacy and family support.  Learn more about us…

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November 16, 2016 at 9:00 am San Diego, CA

ALD Connect Annual Meeting 2016

ALD Connect would like to invite you to the 2016 annual meeting!  Dates: November 16-17, 2016 Location: Wyndham San Diego Bayside Lodging: We have a discounted room block at the Wyndham San Diego

July 27, 2017 Minneapolis, MN

United Leukodystrophy Conference 2017

My 11 year old son has ALD. He underwent a bone marrow transplant in 2014 and I had to quit my job to be with him. The Myelin Project’s family support program put food on our table and made sure our power and water stayed on.

Mollie H.

Client Served

Thank you for the teaching packet for ALD and Lorenzo’s Oil. I will be using this packet with my Associate Degree RN students in their Pediatric Nursing Course. Having the pathophysiological as well as the ethical component allows me to engage my students on many levels.

Ellen K.


I have shown Lorenzo’s Oil to my advanced chemistry students for years. It is a powerful way to teach chemistry, biology and chemistry. Thank you very much!

Todd H.


You can make a difference…