We are a 501(c)3 non-profit organization focused on improving the quality of life for those living with adrenoleukodystrophy (ALD) and adrenomyeloneuropathy (AMN) through researchadvocacy and family support.  Learn more about us…

Our Partners

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Aidans Law LogoTake Action!

Sign the petition and send a letter to your representative.
Join us to expand ALD newborn screening nationwide. Learn more…

Events

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UPCOMING EVENT
August 13, 2016 at 12:00 am Bellevue, WA

EZ Rocks “Skate for a Cure” Fundraiser

The Zakes Foundation’s annual fundraiser is a big stair, big rail and big hubba street skateboarding event, where a big roll-in will give skaters all the speed they need for

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September 18, 2016 Branford, CT

2016 Hammerfest Triathlon for Brian’s Hope

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October 7, 2016 Berlin, Germany

The Myelin Project Deutchland Meeting

News

My 11 year old son has ALD. He underwent a bone marrow transplant in 2014 and I had to quit my job to be with him. The Myelin Project’s family support program put food on our table and made sure our power and water stayed on.

Mollie H.

Client Served

Thank you for the teaching packet for ALD and Lorenzo’s Oil. I will be using this packet with my Associate Degree RN students in their Pediatric Nursing Course. Having the pathophysiological as well as the ethical component allows me to engage my students on many levels.

Ellen K.

PROFESSOR

I have shown Lorenzo’s Oil to my advanced chemistry students for years. It is a powerful way to teach chemistry, biology and chemistry. Thank you very much!

Todd H.

Teacher

You can make a difference…