We are a 501(c)3 non-profit organization focused on improving the quality of life for those living with adrenoleukodystrophy (ALD) and adrenomyeloneuropathy (AMN) through researchadvocacy and family support.  Learn more about us…

Our Partners


Aidans Law LogoTake Action!

Sign the petition and send a letter to your representative.
Join us to expand ALD newborn screening nationwide. Learn more…



Mud tug 2
September 16, 2016 at 12:00 am RIT Rochester, NY

“Mud Tug XXI” Fundraiser for MLD Foundation

Mud Tug has become one of Rochester Institute of Technology’s most popular traditions. It is a campus wide event featuring a tug-of-war competition between teams over mud pits. This event includes

September 18, 2016 Branford, CT

2016 Hammerfest Triathlon for Brian’s Hope

October 6, 2016 Berlin, Germany

The Myelin Project Deutchland Conference

July 27, 2017 Minneapolis, MN

United Leukodystrophy Conference 2017

My 11 year old son has ALD. He underwent a bone marrow transplant in 2014 and I had to quit my job to be with him. The Myelin Project’s family support program put food on our table and made sure our power and water stayed on.

Mollie H.

Client Served

Thank you for the teaching packet for ALD and Lorenzo’s Oil. I will be using this packet with my Associate Degree RN students in their Pediatric Nursing Course. Having the pathophysiological as well as the ethical component allows me to engage my students on many levels.

Ellen K.


I have shown Lorenzo’s Oil to my advanced chemistry students for years. It is a powerful way to teach chemistry, biology and chemistry. Thank you very much!

Todd H.


You can make a difference…