Quest for Life 
Rare Disease Research, Advocacy & Awareness
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Rare Disease

Research Advocacy 

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~News~

September 25th, 2014 - Sacramento

California Governor Jerry Brown officially signed Assembly Bill 1559, sponsored by The Myelin Project and authored by Dr. Richard Pan, making CA the fourth state in the US to screen newborns for adrenoleukodystrophy (ALD). 

Sign the Petition
to add adrenoleukodystrophy (ALD) 
to the Recommended Uniform Screening Panel
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