"A Quest for Life"
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Research , Advocacy

  & Patient Support

for MYELIN disease

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to add adrenoleukodystrophy (ALD)
to the Recommended Uniform Screening Panel
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October 7th, 2014 - Scotland

The Myelin Project's 2014 International Scientific Conference at Edinburgh Hilton Airport Hotel was a gathering of top myelin and leukodystrophy researchers in the world.  

September 25th, 2014 - Sacramento

California Governor Jerry Brown officially signed Assembly Bill 1559, sponsored by The Myelin Project and authored by Dr. Richard Pan, making CA the fourth state in the US to screen newborns for adrenoleukodystrophy (ALD). 

Running for Research
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