Washington, D.C. – February 16th, 2016 – Secretary of the Department of Health & Human Services, Sylvia Burwell, approved the addition of adrenoleukodystrophy (ALD) to the Recommended Uniform Screening Panel (RUSP), the federal list of genetic diseases recommended for state newborn screening programs.
The addition of ALD to the RUSP may expedite the process of adding ALD to state newborn screening programs. California and New Jersey can now join New York and Connecticut in screening newborns for ALD allowing for timely diagnosis and treatment.
Our work has only begun, however: there are still 46 states that need to begin ALD newborn screening as soon as possible. Thank you to Secretary Burwell, the incredible team of ALD advocates across the country, and to all of you for your support to help make this vision a reality. Let the lifesaving begin!