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We are 
a 501(c)3 non-profit organization.
All donations are fully tax-deductible.

The Myelin Project was established in 1989 by Augusto and Michaela Odone for their son Lorenzo who suffered from ALD - a rare genetic myelin disease that deteriorates myelin in the brain and central nervous system.

Although not medical doctors, the Odones developed a treatment, Lorenzo's Oil now adopted throughout the world. The story of the Odones' struggle against ALD was dramatized in the 1992 Universal Studios release Lorenzo's Oil starring Nick Nolte and Susan Sarandon. For information on how to obtain the oil, click here.

We are a proud partner of ALD Connect to advance research and care. Learn more
We are proud partners of the ALD/AMN Global Alliance, an international group of like-minded non profits. Learn more...

We are proud partners of the Leukodystrophy Alliance, an international group of like-minded non profits.
Learn more...

May 15th, 2015
The Children's Hospital of Philadelphia & The Leukodystrophy Care Network launch Leukodystrophy Center of Excellence to advance care and treatment. We are excited to be on the planning committee. Learn more...

April 17th, 2015

The 2015 Trap Shoot Fundraiser in Lincoln, CA to benefit The Myelin Project Research Fund raises over $30,000! Thank you to Myelin Project Board Member and ALD mother Diane Love & Family for organizing. Learn more...

January 1st, 2015
The Myelin Project's Lorenzo Odone Patient Support Fund is established; campaign raises over $30,000 to support low income ALD/AMN patients and their families. Learn more...

October 7th, 2014

The Myelin Project's 2014 International Scientific Conference at Edinburgh Hilton Airport Hotel was a gathering of the world's top myelin and leukodystrophy researchers. Learn more...

September 25th, 2014
California Governor Jerry Brown officially signed Assembly Bill 1559, sponsored by The Myelin Project and authored by Dr. Richard Pan, making CA the fourth state in the US to add  adrenoleukodystrophy (ALD) to its newborn screening program. Learn more...

As a Gold-level GuideStar Exchange participant
we are committed to transparency.
Together, We Can #SaveTheBoys. Support 
ALD Newborn Screening. Sign The Petition.
If you are an ALD or AMN patient, you can join the ALD Connect Patient Portal and be part of a global effort to fight ALD/AMN. Learn more...
Lorenzo's Oil
designed to normalize the accumulation
of the very long chain fatty acids in the brain
thereby halting the progression of adrenoleukodystrophy (ALD)
Learn more