News

News

Janis Sherwood Joins our Board of Directors

It is with great pleasure that we welcome Janis Sherwood to our Board of Directors. Janis lost her son Sawyer to ALD back in 2003 and since then has been traveling thousands of miles throughout the country in a retrofitted 1981-model RV raising‪ awareness‬ of ‪‎ALD‬ to help other parents avoid the same

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ALD added to Recommended Uniform Screening Panel

Washington, D.C. – February 16th, 2016 – Secretary of the Department of Health & Human Services, Sylvia Burwell, approved the addition of adrenoleukodystrophy (ALD) to the Recommended Uniform Screening Panel (RUSP), the federal list of genetic diseases recommended for state newborn screening programs. The addition of ALD to the RUSP may expedite

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The Myelin Project & Brian’s Hope Grant $50,000 to Dr. Raymond’s Lab

In partnership with Brian’s Hope Foundation, The Myelin Project granted $50,000 to Dr. Gerald Raymond‘s lab at the University of Minnesota. Raymond’ lab works in collaboration with the Inherited Metabolic and Storage Disease Bone Marrow Transplantation Program, the Center for Orphan Drug Research, the Center for Magnetic Resonance Research, and others,

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Dr. Ian Duncan

Dr. Ian Duncan Awarded Lifetime Achievement Award

We are proud to announce that Dr. Ian Duncan, Chair of our Scientific Advisory Committee, has been awarded the 2015 Lifetime Excellence in Research Award from the American Veterinary Medical Association for several years of work in myelin disease research. “Dr. Duncan has spent his career exploring the causes and

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