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[menu] Hello [firstname], HAPPY HOLIDAYS It is that time again, time to look back over 2009 and see where we have been and where we are going. Happy 20th Anniversary to the Myelin Project. It was twenty years ago that Augusto and Michaela Odone created The Myelin Project. When their son, Lorenzo, was diagnosed with adrenoleukodystrophy, they were told that nothing could be done. They were told to take him home and wait for him to die. They would not ...

Hello [firstname], Welcome to the The Myelin Project newsletter here is some very exciting new research ...

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Untitled Document Hello [firstname], Welcome to the The Myelin Project newsletter of upcoming events, articles, jobs and more from our membership. Calendar Events Articles Releases Calendar Events for 19-May-09 to 1-Jul-09 6th Annual Got the Nerve Triathlon Speaker's Name: Day: Saturday 23-May-09 8:00 AM Location: Mt. Gretna Mt. Gretna, PA 17064 Summary: 6TH ANNUAL GOT THE NERVE TRIATHLON Saturday May 23, ...

Treating The Other Face of X-ALD

Untitled Document The Myelin Project needs your support in continuing our mission to end human suffering ...

2008 End of Year Newsletter

Although Dr. Klaus-Armin Nave, Department of Neurogentics, Max-Planck-Institute of Experimental Medicine, was unable to attend the meeting in Ft. Worth, his pre-clinical work on a treatment for Pelizaeus-Merzbacher disease was presented by his colleague, Dr. Celia Kassmann.

Dr. Gerald Raymond, of The Kennedy Krieger Institute, Johns Hopkins University, presented a summary of current progress in the development of newborn screening in adrenoleukodystrophy

Dr. Celia Kassmann of the Department of Neurogenetics, Max-Planck-Institute of Experimental Medicine discussed her recent studies on inflammatory neurodegeneration caused by inactivation of peroxisome function in oligodendrocytes.

Dr. Alessandra Biffi also reported on a novel strategy for gene therapy of globoid cell leukodystrophy.

Dr. Yoichi Kondo, University of Wisconsin, discussed the long-term outcome of bone marrow transplantation in a mouse model of Krabbe’s disease

Dr. Alessandra Biffi, of the San Raffaele Scientific Institute, Milan, Italy, reported on her group’s advances in hematopoietic stem cell based gene therapy for the treatment of metachromatic leukodystrophy.

Violetta Zujovic, Ph.D., Centre Hospitalier Universitaire, Pitié-Salpêtrière, Paris, reported on her work to identify cell types that might be useful in re-myelination.

Dr. Anne Baron-Evercooren, Centre Hospitalier Universitaire, Pitié-Salpêtrière, Paris, presented her investigation of how Schwann cells might be altered so that they might be better candidates for myelin transplantation. By forcing the cells to express an enzyme, sialyltransferase, their ability to migrate was greatly improved.

Professor Neil J. Scolding, FRCP PhD, University of Bristol Institute of Clinical Neurosciences, U.K., provided a report of his studies of bone-marrow derived cells for the treatment of multiple sclerosis.

Dr. Robin Franklin, Professor of Neuroscience, Cambridge Center for Brain Repair, University of Cambridge, U.K., related how studies in his laboratory demonstrate an unexpected connection to other aspects science.

Dr. Gianvito Martino of the Insstitute of Experimental Neurology at the San Raffaele Institute in Milan, Italy reported on the therapeutic plasticity of neural stem cells.

The Myelin Project held its annual meeting on October 30 - November 2, 2008 in Fort Worth, Texas. Here are the research progress reports presented at that meeting.