Press Releases - News for The Myelin Project

The top 50 press releases in our database are displayed below.

28 Record(s) Found. Displaying Page 1:

Genetic Alliance Issues Statement Applauding New NIH Therapeutics for Rare and Neglected Diseases Program
Release Date: 21-May-09 Author or Contact: Category: Rare and Orphan diseases Subcategory: Press Release
WASHINGTON � May 20, 2009 � Earlier today, the National Institutes of Health (NIH) announced the establishment of a new initiative called the Therapeutics for Rare and Neglected Diseases (TRND) Program, a federally mandated effort to encourage and speed the development of new drugs for rare and neglected diseases. Sharon Terry, president and chief executive officer of Genetic Alliance, a nonprofit health advocacy organization, issued the ...
Click to read Genetic Alliance Issues Statement Applauding New NIH Therapeutics for Rare and Neglected Diseases Program

NORTHWOOD SCHOOL STUDENTS RAISE MONEY FOR MYELIN DISEASE RESEARCH
Release Date: 14-May-09 Author or Contact: Candace Root Category: myelin disease reserach Subcategory: Press Release
Thank you and congratulations to Northwood School, Lake Placid, NY from The Myelin Project. We appreciate everything you do for The Myelin Project and supporting our cause.
Click to read NORTHWOOD SCHOOL STUDENTS RAISE MONEY FOR MYELIN DISEASE RESEARCH

MS NEWS - Ex-Salesman Uses Net to Inform, Persuade
Release Date: 7-May-09 Author or Contact: Stuart Schlossman Category: Multiple Sclerosis Subcategory: Press Release
Apathy perplexes Stuart Schlossman. The way he sees it, information about MS abounds
Click to read MS NEWS - Ex-Salesman Uses Net to Inform, Persuade

Augusto Odone New Investigator Award for AMN research
Release Date: 16-Apr-09 Author or Contact: Candace Root Category: AMN Subcategory: Press Release
TREATING THE OTHER FACE OF X-ALD It is a great pleasure to announce the launch of the Augusto Odone New Investigator Award, a project co-funded by The Myelin Project and Olivers Army http://www.oliversarmy.org Young scientists embarking on their research career are invited to submit their plans for a project aimed at finding treatments for adrenomyeloneuropathy (AMN). This debilitating disorder and X-linked adrenoleukodystrophy (X-ALD) ...
Click to read Augusto Odone New Investigator Award for AMN research

Hope for the Future: Embryonic Stem Cells
Release Date: 31-Mar-09 Author or Contact: Alison Kupferman Category: Stem Cell Research Subcategory: Press Release
The American Brain Coalition (ABC) is a non-profit organization that brings together people with disabling brain disorders, the families of those that are affected, and the professionals that research and treat diseases of the brain. The mission of the ABC is to reduce the burden of brain disorders, and advance the understanding of the brain.
Click to read Hope for the Future: Embryonic Stem Cells

Developing Treatments for Adrenomyeloneuropathy and Multiple Sclerosis
Release Date: 27-Mar-09 Author or Contact:
Nutra Pharma Corp., a biotechnology company focused on developing treatments for Adrenomyeloneuropathy (AMN), HIV and Multiple Sclerosis (MS), announced that its wholly-owned drug discovery subsidiary, ReceptoPharm, has introduced a line of specialized contract research services targeted at the early-stage life science market.
Click to read Developing Treatments for Adrenomyeloneuropathy and Multiple Sclerosis

New Research Award for AMN
Release Date: 18-Mar-09 Author or Contact: Candace Root Category: myelin disease reserach Subcategory: Adrenomyeloneuropathy
The Myelin Project announces the creation of the Augusto Odone Young Investigator Award. This Award is created to encourage promising young investigators to pursue a career in remyelination research. This Research Award will be co-funded by Oliver's Army and The Myelin Project. This first Award is aimed at research of adrenomyeloneuropathy (AMN). Adrenomyeloneuropathy (AMN) is a rare inherited metabolic disorder that is a ...
Click to read New Research Award for AMN

MYELIN PROJECT OF CANADA: UNA SERATA CONTRO LA SCLEROSI MULTIPLA
Release Date: 12-Mar-09 Author or Contact: Candace Root Category: PSA Subcategory: Myelin Disease Research
Marilena Carinci, insieme ad un gruppo di amiche e con la fattiva collaborazione dell'ufficio del Consigliere Regionale di Vaughan Gino Rosati, ha organizzato una serata a favore della ricerca sulla Sclerosi Multipla. Ospite della serata è stato Augusto Odone ed è stato proiettata una clip del film "L'olio di Lorenzo", basato sulla storia vera della ricerca disperata di una medicina per Lorenza deceduto lo scorso anno all'età ...
Click to read MYELIN PROJECT OF CANADA: UNA SERATA CONTRO LA SCLEROSI MULTIPLA

Myelin Board Member Chris Kaag Receives Alumni Achievement Award
Release Date: 17-Feb-09 Author or Contact: Heather Angstadt Category: Recent News Subcategory: Press Release
It gives me great pleasure to share with you today the exciting news that Penn State Berks alumnus Christopher Kaag ' 04 has been chosen by University Park as one of ten alumni to receive the 2009 Alumni Achievement Award. The Alumni Achievement Award recognizes alumni 35 years of age and younger for their extraordinary professional accomplishments. Recipients of the award are invited to return to the campus to share their expertise with ...
Click to read Myelin Board Member Chris Kaag Receives Alumni Achievement Award

Aldagen Receives Orphan Drug Designation for ALD-101
Release Date: 15-Jan-09 Author or Contact: Ed Field Category: adrenoleukodsytrophy Subcategory: Press Release
Aldagen Receives Orphan Drug Designation for ALD-101 ALD-101, a Novel Stem Cell Therapy, Is Currently in Phase 3 Trial DURHAM, NC -- (Marketwire) -- 10/30/08 -- Aldagen, Inc. today announced that it hasreceived orphan drug designation for ALD-101 from the U.S. Food and DrugAdministration (FDA). The designation was granted for the use of ALD-101to improve patient outcomes by decreasing time to platelet and neutrophilengraftment in patients ...
Click to read Aldagen Receives Orphan Drug Designation for ALD-101

MLD Family Conference 2009
Release Date: 13-Jan-09 Author or Contact: Dean Suhr Category: MLD Subcategory: Myelin Disease Research
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Click to read MLD Family Conference 2009

Myelin Project Documentary and PSA
Release Date: 1-Dec-08 Author or Contact: Candace Root Category: PSA Subcategory: Press Release
Please view our documentary that will air on the Giving Back TV Series on PBS stations across the country
Click to read Myelin Project Documentary and PSA

Myelin Project Featured on Giving Back Series
Release Date: 1-Dec-08 Author or Contact: Candace Root Category: PSA Subcategory: Press Release
Please view our documentary that will air on the Giving Back TV Series on PBS stations across the country
Click to read Myelin Project Featured on Giving Back Series

Opexa Provides Additional Promising Data Including Statistically Significant Reduction in Disability With Tovaxin(R) for the Treatment of Multiple Sclerosis
Release Date: 23-Oct-08 Author or Contact: Rachel Lipsitz Category: myelin disease reserach Subcategory: Multiple Sclerosis
Thursday October 23, 7:15 am ET Opexa Provides Additional Promising Data Including Statistically Significant Reduction in Disability With Tovaxin(R) for the Treatment of Multiple Sclerosis Tovaxin Also Demonstrates Reduction in Relapse Risk and Myelin T-cell Reactivity in Patients With More Active Disease THE WOODLANDS, Texas--(BUSINESS WIRE)--Opexa Therapeutics, Inc. (NASDAQ:OPXA - News), ...
Click to read Opexa Provides Additional Promising Data Including Statistically Significant Reduction in Disability With Tovaxin(R) for the Treatment of Multiple Sclerosis

Opexa Announces Top-Line Results from Phase IIb Clinical Trial of Tovaxin� for the Treatment of Multiple Sclerosis
Release Date: 19-Sep-08 Author or Contact: Rachel Lipsitz Category: myelin disease reserach Subcategory: Multiple Sclerosis
Opexa Announces Top-Line Results from Phase IIb Clinical Trial of Tovaxin® for the Treatment of Multiple Sclerosis Tovaxin Shows Favorable Annualized Relapse Rate and Excellent Safety Profile MONTREAL, Canada (September 19, 2008) � Opexa Therapeutics, Inc. (NASDAQ: OPXA), a company dedicated to the development of patient-specific cellular therapies for the treatment of autoimmune diseases ...
Click to read Opexa Announces Top-Line Results from Phase IIb Clinical Trial of Tovaxin� for the Treatment of Multiple Sclerosis

Making rare diseases a public-health and research priority
Release Date: 17-Jun-08 Author or Contact: Candace Root Category: adrenoleukodsytrophy Subcategory: rare diseases
Editorial 1972 www.thelancet.com Vol 371 June 14, 2008 Making rare diseases a public-health and research priority On May 30, a 30-year-old man with adrenoleukodystrophy died of pneumonia. Lorenzo Odone was a remarkable individual from a remarkable family. He lived for 24 years after his adrenoleukodystrophy was diagnosed (20 years longer than predicted). His longevity might have been, in part, due to the combination of erucic and oleic ...
Click to read Making rare diseases a public-health and research priority

Rare Diseases What's next?
Release Date: 17-Jun-08 Author or Contact: Candace Root Category: myelin disease reserach Subcategory: rare diseases
Rare diseases: what�s next? Rare diseases are life-threatening or chronically debilitating diseases with a prevalence lower than one per 2000 in the European Community or one per 1250 in the USA. Only a few of the 5000 recognised rare diseases have a prevalence close to those limits, and most of them are much rarer, such as muscular dystrophy, or haemophilia, and others are so uncommon that they are defi ned as being ultra-rare, such as ...
Click to read Rare Diseases What's next?

Zymenex gets FDA approval of Investigational New Drug
Release Date: 16-Jun-08 Author or Contact: Candace Root Category: MLD Subcategory: Press Release
Zymenex has received FDA approval of its Investigational New Drug (IND) application for its enzyme Metazym, which is intended for use in the treatment of the rare, lysosomal disease Metachromatic Leukodystrophy (MLD). The company is now preparing for Phase 2 clinical trials in the USA.
Click to read Zymenex gets FDA approval of Investigational New Drug

Metachromatic Leukodystrophy Clinical Trial
Release Date: 1-Jun-08 Author or Contact: Candace Root Category: MLD Subcategory: Press Release
To those with new diagnosis of Metachromatic Leukodystrophy: Your child may be able to participate in the upcoming Metazym Clinical Trial to be conducted at the University of North Carolina (UNC). Screening for 10-12 children is now in progress. Please contact Dr. Maria Escolar at (919)966-4810 for more information.
Click to read Metachromatic Leukodystrophy Clinical Trial

LORENZO ODONE PASSED AWAY MAY 30, 2008
Release Date: 30-May-08 Author or Contact: Candace Root Category: adrenoleukodsytrophy Subcategory: Lorenzo Odone
It is with great sadness that we announce that Lorenzo Odone died today in his sleep at home with ihs father Augusto Odone and friend Omouri Hassane at his side.
Click to read LORENZO ODONE PASSED AWAY MAY 30, 2008

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