The Myelin Project

Lorenzo Odone Memorial Walk

Fri, 08 Aug 2008 17:17:48 GMT

Lorenzo Odone Memorial Walk
Start Date: 30-May-09 9:00 AM
End Time: 30-May-09 5:30 PM
Speaker:

Event Details:

This event will be held at locations all over the world. If you would like to host a Lorenzo Odone Memorial Walk in your community on May 30, 2009 please contact us.

Myelin Project Annual Meeting

Mon, 12 May 2008 22:12:31 GMT

Myelin Project Annual Meeting
Start Date: 30-Oct-08 6:00 PM
End Time: 2-Nov-08 3:00 PM
Location: Fort Worth Historic Stockyards Hotel, Fort Worth, Texas 76106
Speaker:

Event Details:

We are working on the scientific program for this meeting and will make this information available on our web site once it has been finalized. Please contact our office if you would like more information.

Fort Worth Historic Stockyards Hotel

109 E. Exchange Avenue

Fort Worth, Texas USA 76106

One Step Closer - Walk for Leukodystrophy

Tue, 12 Aug 2008 17:46:30 GMT

One Step Closer - Walk for Leukodystrophy
Start Date: 11-Oct-08 9:00 AM
End Time: 11-Oct-08 12:00 PM
Location: Genesys Regional Medical Center, Grand Blanc, MI
Speaker:

Event Details:

Check-in and late registration begins at 9:00 a.m. The Walk begins at 10:00 a.m.

Registration fee is $20.00 per person and includes T-shirt.

Genesys Regional Medical Center

1 Genesys Parkway

Grand Blanc, MI USA

One Step Closer - Walk for Leukodystrophy and Bone Marrow Drive

Tue, 12 Aug 2008 17:42:19 GMT

One Step Closer - Walk for Leukodystrophy and Bone Marrow Drive
Start Date: 4-Oct-08 9:00 AM
End Time: 4-Oct-08 12:00 PM
Location: Laguna Niguel Regional Park, Shelter 3, Laguna Niguel, CA
Speaker:

Event Details:

Check-in and late registration begins at 9:00 a.m. The Walk will begin at 10:00 a.m.

Registration is $20.00 per person and includes T-shirt.

Laguna Niguel Regional Park, Shelter 3

28241 La Paz Road

Laguna Niguel, CA USA

12th Annual Hammerfest Triathlon

Fri, 01 Aug 2008 17:57:54 GMT

12th Annual Hammerfest Triathlon
Start Date: 14-Sep-08 7:30 AM
End Time: 14-Sep-08 12:00 PM
Location: Owenego Beach Club and Inn, Branford, CT
Speaker:

Event Details:

The 2008 12th Annual Hammerfest will be a memorial event in honor of Lorenzo Odone. This event is hosted by Jack and Jean Kelley and the community of Branford and is held each year in honor of their son, Brian Kelley, who has adrenoleukodystrophy (ALD). Funds raised at this event will be designated to fund a newborn screening test for ALD.

Owenego Beach Club and Inn

One Step Closer - Walk for Leukodystrophy

Tue, 12 Aug 2008 17:34:49 GMT

One Step Closer - Walk for Leukodystrophy
Start Date: 7-Sep-08 9:00 AM
End Time: 7-Sep-08 12:00 PM
Location: Lake Nokomis, Minneapolis, MN
Speaker:

Event Details:

Check in and late registration begins at 9:00 a.m. The Walk begins at 10:00 am

Registration fee $20.00 per person (includes T-shirt)

Lake Nokomis

4955 West Lake Nokomis Parkway

Minneapolis, MN USA