The Odone Family Support Program was launched in 2015 to support low-income families living with adrenoleukodystrophy (ALD) and adrenomyeloneuropathy (AMN). We are committed to lessening the financial burden of care while providing comfort to patients and their families with food, medical supplies not covered insurance, out-of-pocket medical expenses, utility bill payments, etc. We also offer travel scholarships for patient families in need of assistance to attend medical conferences. To date, we have granted over $25,000 to ALD and AMN families in need.
The Myelin Project encourages residents of the United States and Canada to apply for financial assistance if you (or your dependent) suffer(s) from ALD and/or AMN and need(s) help paying costs associated with medical care and/or living expenses. Through the Odone Family Support Fund, we can provide financial assistance based on your eligibility and income. If you are an ALD or AMN patient and/or a family member of a ALD or AMN patient with low-income and would like to apply for financial assistance, please fill out the application.
If you have any questions or comments regarding the application process, please contact us.