Janis Sherwood

BOARD MEMBER

Janis started a non-proft called “Fight ALD.” She has spent the last 11 years of her life dedicated to spreading awareness about ALD, offering support to the patient community and working to get all newborn babies screened for this deadly disease. Her son Sawyer, died of ALD just six months after his diagnosis on Sept. 29, 2003, six weeks shy of his 9th birthday. After educating herself about the adult onset of the disease she  realized that she also lost her 63 year old uncle to the disease before her son was even born, but he had been misdiagnosed with an unknown brain disease and debilitating arthritis. Janis and her mother are both patients with AMN and her 22 year old daughter is a carrier.

janis@fightALD.org 1-800-869-3546
Janis Sherwood